|Compare the nodules. Left panel is from Oct 18.|
Right panel is December 10.
The best case outcomes for chemotherapy: The ideal is that there are symptoms and the chemotherapy relieves them by shrinking the cancer. If there are currently no symptoms, chemotherapy would delay the symptoms developing. She said she didn't think chemotherapy was worth it if it only slows progression. I might try it, until it starts to suck, I don't know. She can give me ones that are known to be better tolerated. They won't necessarily work any worse than anything else!
|A different view. If you compare at around 10 o'clock |
from the trachea (black hole in the middle)
you can see lymph nodes getting much bigger.
- Negative for HER2.
- Positive for EGFR immuno-histo chemistry
- TBA for EGFR mutation.
I have written to Dr. Block's place asking what the potential benefits of consulting with them might be (since my insurance won't cover being treated by them, and Dr. Nelson doesn't think it's a good idea to get treatment in a place I don't know anyone.) Also, Nancy's going to research a drug used for adenocarcinomas in a 2005 clinical trial called RAV12.
|Doc Nelson's shoes|
and my finger.
They're around the same size
Median metastatic survival time is 9-12 months.* (It's been six since we first found out about the nodules.) The only part of the meeting that was intense for me was asking if I would eventually suffocate. She said morphine works well for dealing with shortness of breath. I will talk to Carol the social worker about hospice care, etc. Signs that it is nearing the end include getting weaker and fatigued. She also pointed out that I will know when time is getting short.
She said cancer patients are more prone to getting blood clots on planes, so need to make sure to stretch on the plane.
* Realizing I don't really know what those stats apply to. Overall cancer? My kind of cancer with or without treatment? And I forget what median means....
Remember these kids? They are great.