|Nimbus Cukurcuma Hamam II, 2012|
by Berndnaut Smilde
While feeling the contact with my body and the slow relaxing, images and thoughts appeared. My mind went to my chest, how it hurts like grief, like a regular heartache, but is cancer. So finally it is heartache that will kill me. Again, I feel like no one, doctors, friends, me, was expecting it to go this way. But it keeps going. For the last few months, the possibility that things might go in a different direction seems to get more and more remote. She said some cancers are resistant to treatment, like mine, and pancreatic. I didn't know mine had that reputation. Or maybe she was just talking about mine in particular.
The battery in my recorder was low, so while it acted like it was recording the meeting with Dr. Nelson, it wasn't.
|Note that the tumors are|
along the central line.
Big one in upper right on photo.
Recently I looked up the questions Renee, the SSF social worker, advised me to ask the oncologists. (That post is from March, here.)
- Do you foresee I'm always going to be on chemotherapy?
- If I don't do more treatment, how long would I live?
- RE more chemotherapy - What is it buying me? What if I don't do it?
- What would a decline with my type of cancer look like?
Dec 27, 2012 - Jan 10, 2013: Hawaii
February - April: Home. Eight week MBSR course starts Feb 6. Class at city college?
May 3 - June 9: NH, NYC, Spain, LA. [Co-lead retreat at Aryaloka in New Hampshire + practice day. Visit New York. May 24 - Jun 5: Two weeks of Dawn's ordination retreat in Aragon, Spain. Jun 5-9: Generation X Teacher's Conference at Deer Park monastery in So. Cal.]
Rest of June and July: Home. Perhaps Montana around July 4. Perhaps leading a "Mindfulness in the Wilderness" retreat in Montana!
August 2 - Oct 2: Scotland, travel, and monthlong retreat Devon England. [August 2-9: Co-lead improvisation retreat at Dhanakosa in Scotland. Possible Aug 8-12: Order convention at Wymonham. Aug 21: 50th birthday. Sep 4-Oct 2: Co-lead monthlong Buddhafield retreat with Paramananda in wet field in Devon, England.]
I feel very healthy and energetic (with minor chest pain and some radiation-reduced functionality in my pelvis). All the complimentary medicine, walking, working with my mind, shamanic healing, eating no sugar...did it help anything? It makes me feel good anyway. I was thinking yesterday, My body is finishing up with living. The cancer is incredibly robust.
In any case I need to have a plan, so I'm planning to live for around another year. After that is just bonus points. Or maybe I'll start living on kale smoothies and that will cure everything, but it's hard for me to believe anything remotely like that anymore. I will call Keith Block's place in Chicago on Monday and see what they say...